Reorganization Motivation to Lift Your Organizing Spirits - The following is a guest post on reorganization motivation from regular contributor, Rachel at Useful Beautiful Home. I’ve tried writing this post several...
Thursday, March 26, 2009
If I could, would I take away my daughter’s 47th chromosome and leave her Down syndrome-less? This question has been floating around the blogosphere.
It is not a possibility. It will not be a possibility. So why are we struggling to answer it? Consider what other questions lay behind the question. Do I accept my child as is? Would my child still have the same endearing personality without the Down syndrome? Did God specifically design my child this way? Is it wrong of me to want to excise the 47th C? Would life be better for my child if he or she had only 46C?
Yes, I accept my child as she is. I love her completely. If we could go back and not make her, we would not go back.
Maybe her personality would be the same, maybe it wouldn’t. This is a tangle of Nature vs. Nurture. I can see how her low tone causes her to be more mellow about everything which in turn causes us to respond to her in ways we might not otherwise, which in turn causes her to develop new actions and reactions. It’s the butterfly effect and yet our genetic makeup does influence our personalities. So there is no way to know the answer to this but either way, I am convinced she would have a wonderful personality.
No, God didn’t decide to throw in an extra 21st chromosome. He didn’t “do” this to her but He did allow it to happen. And I am glad He did because if He had stopped it from happening, she would be either never conceived or dead. (Uh, and in case you’re wondering, God doesn’t have a special needs nursery up there. He doesn’t pick out “special” babies and send them to “great” parents like us. Genetically speaking, sh*t happens and He can turn that into a learning experience and a blessing.)
Maybe it is wrong to want to alter our children into a more “typical” state, maybe it isn’t. We think nothing of having a conspicuous birthmark or an extra toe removed, why not an extra chromosome? Then again, surely these upgrades come with risks. Wishing your baby could magically not have Down syndrome is not the same as wanting your child to undergo a medical procedure that would alter his genetic code. One could make a subjective argument that the latter is wrong.
A better life? Well, that depends on how it’s lived, doesn’t it? We all hope our children turn out ok but the world is full of depression, divorce, addictions, and dysfunction. There is no guarantee that my typical children will have more fulfilling “better” lives than my 47C girl. More importantly, this life is ephemeral but what we do here determines our eternity. The Ds probably gives Kimani an advantage for securing a happy afterlife.
Yes. Maybe. No. Maybe. That depends. Those are my answers. Add them up and you get my answer to the first question, Would I? And, since it is just theoretical, I can vacillate at will.
My question is, will God take it away when He gives her a new heavenly body? (2Cr 5:1) I believe He will. While I think that anyone incapable of making a decision about Christ will be saved automatically (and that would certainly include some people with Down syndrome), I do not believe there will be Down syndrome in Heaven.
Does that mean He thinks she is imperfect as is? Aren’t we all? What is His view of perfection anyway? I suppose that would be Jesus, and my dear girl will not be sinless...(especially if she takes after her mother). Whether it’s snitching an extra candy or some other disobedience, she will remain only human until her “house is torn down” and she receives a new, perfect one from God.
When we meet there, will she say to me... “Mom, you turned down a theoretical Ds cure? What were you thinking?” or “Mom, you were going to theoretically rip out one of my chromosomes? What were you thinking?” Lol, I don’t know.